Psychosocial Impact of COVID-19 Pandemic on Parents of Children with Special Needs

Authors

  • Muhammad Nauman Department of Developmental & Behavioral Pediatrics, University of Child Health Sciences, The Children’s Hospital, Lahore, Pakistan
  • Shazia Maqbool Department of Developmental & Behavioral Pediatrics, University of Child Health Sciences, The Children’s Hospital, Lahore, Pakistan
  • Anam Ali Department of Developmental & Behavioral Pediatrics, University of Child Health Sciences, The Children’s Hospital, Lahore, Pakistan

DOI:

https://doi.org/10.51253/pafmj.v74i1.9340

Keywords:

COVID-19, Disabled children, Child, Preschool, Adolescent, Parents, Psychology

Abstract

Objective: To determine the association of COVID-19-related psychosocial Impact in parents of children with special needs.

Study Design: Cross-sectional study.

Place and Duration of Study: Developmental-Behavioral Pediatrics Department, University of Child Health Sciences, The
Children’s Hospital, Lahore, Pakistan, from August to December 2021.

Methodology: A study sample of 213 parents of children (aged 1-16 years) with disabilities was recruited. The Perceived Stress Scale was administered.

Results: Most children 133(62.4%) with special needs were males with a mean age of 61.36±29.17 months. 91(42.7%) parents fear that either themselves or their family members could be affected by COVID-19. 75(35.2%) parents reported that their special needs child knew preventive measures for COVID-19. 147(69%) parents were facing social difficulties because of COVID-19. Income was negatively correlated with stress. Stress was more evident in parents who had a fear of the loss of a family member and who thought that disabled children needed more protection than their other children.

Conclusion: The COVID-19 pandemic had a negative effect on parents of children with special needs due to the restrictions
imposed all over the country. One of the few factors that increased stress among parents of special needs children in COVID19 were financial and social difficulties.

Downloads

Download data is not yet available.

References

Shereen MA, Khan S, Kazmi A, Bashir N, Siddique R. COVID-19

infection: Origin, transmission, and characteristics of human

coronaviruses. J Adv Res 2020; 24: 91-98.

https://doi.org/10.1016/j.jare.2020.03.005.

Guo YR, Cao QD, Hong ZS, Tan YY, Chen SD, Jin HJ, et al. The

origin, transmission and clinical therapies on coronavirus disease

(COVID-19) outbreak - an update on the status. Mil Med

Res 2020; 7(1): 11. https://doi.org/10.1186/s40779-020-00240-0.

Fegert JM, Vitiello B, Plener PL, Clemens V. Challenges and

burden of the Coronavirus 2019 (COVID-19) pandemic for child

and adolescent mental health: a narrative review to highlight

clinical and research needs in the acute phase and the long return

to normality. Child Adolesc Psychiatry Ment Health 2020; 14: 20.

https://doi.org/10.1186/s13034-020-00329-3.

Hughes N, Anderson G. The experience of the COVID-19

pandemic in a UK learning disability service: Lost in a sea of ever

changing variables - a perspective. Int J Develop Disabil 2020.

https://doi.org/10.1080/20473869.2020.1773711.

Courtenay K, Perera B. COVID-19 and people with intellectual

disability: impacts of a pandemic. Ir J Psychol Med 2020; 37(3):

-236. https://doi.org/10.1017/ipm.2020.45.

Abdelfattah F, Rababah A, Alqaryouti I, Alsartawi Z, Khlaifat D,

Awamleh A, et al. Exploring Feelings of Worry and Sources of

Stress during COVID-19 Pandemic among Parents of Children

with Disability: A Sample from Arab Countries. Educ Sci 2021;

(5): 216. https://doi.org/10.3390/educsci11050216.

Willner P, Rose J, Kroese BS, Murphy GH, Langdon PE, Clifford C,

et al. Effect of the COVID-19 pandemic on the mental health of

carers of people with intellectual disabilities. J Appl Res Intellect

Disabil 2020; 33: 1523–1533. https://doi.org/10.1111/jar.12811.

Ali A, Abbas S, Khan AA, Khan AS, Abbas HSM. Difference in

stress-related indicators between employees experiencing partial

and complete lockdowns during the COVID-19 pandemic in

Pakistan. J Emerg Manag 2021; 19(7): 177-192.

https://doi.org/10.5055/jem.0621.

Ali A, Abbas S, Khan AA, Khan AS, Farid A, Rauf MT. Health

Risk Factors among Doctors, Psychologists and Nurses of

Pakistan during COVID-19 Pandemic. J Psychol 2022; 156(4):

-294. https://doi.org/10.1080/00223980.2022.2039891.

Khan AA, Ali A, Sulehria SB, Yousaf MK, Sadiq Qayyum,

AbaidUllah S, et al. Impact of Covid-19 on training of house

officers and post-graduate residents during 3rd & 4th Wave of

Covid-19 Pandemic in a Tertiary Care Hospital. J Pak Soc Intern

Med 2022; 3(1): 41-44.

Maqbool S, Rahman F, Ali A, Farid A, Zahra W, Ullah E, et al.

Spectrum of disabilities at a tertiary care hospital; Challenges

and Recommendations. Pak Ped J 2022; 46(3): 245-53.

Cohen S, Kamarck T, Mermelstein R. A global measure of

perceived stress. J Health Soc Behav 1983; 24(4): 385-96.

Ali A, Khan AA, Abbas S, Khan AS, Ullah E. Cognitive appraisal,

Coping, Stress and Fear Contracting Covid-19 in Working People

in Pakistan. J Ration Emot Cogn Behav Ther 2021; 1-20.

https://doi.org/10.1007/s10942-021-00433-z.

Sideropoulos V, Dukes D, Hanley M, Palikara O, Rhodes S, Riby

DM, et al. The Impact of COVID-19 on Anxiety and Worries for

Families of Individuals with Special Education Needs and

Disabilities in the UK. J Autism Dev Disord 2022; 52(6): 2656-

https://doi.org/10.1007/s10803-021-05168-5.

Werner S, Hochman Y, Holler R, Shpigelman CN. Burden and

Growth during COVID-19: Comparing Parents of Children with

and without Disabilities. J Child Fam Stud 2022; 31(6): 1535-1546.

https://doi.org/10.1007/s10826-022-02282-5.

Rahman F, Maqbool S, Ali A, Mahmud T, Azhar H, Farid A, et al.

Parenting practices and aggression in childhood behaviour

disorders. Pak Armed Forces Med J 2023; 73(1): 74–78.

https://doi.org/10.51253/pafmj.v73i1.6920.

Wang L, Li D, Pan S, Zhai J, Xia W, Sun C, et al. The relationship

between 2019-nCoV and psychological distress among parents of

children with autism spectrum disorder. Global Health 2021;

(1): 23. https://doi.org/10.1186/s12992-021-00674-8.

Cankurtaran D, Tezel N, Yildiz SY, Celik G, Unlu-Akyuz E.

Evaluation of the effects of the COVID-19 pandemic on children

with cerebral palsy, caregivers' quality of life, and caregivers'

fear of COVID-19 with telemedicine. Irish J Med Sci 2021; 190(4):

–1480. https://doi.org/10.1007/s11845-021-02622-2.

Werner S, HochmanY, Holler R. Burden and growth during

COVID-19: Comparing parents of children with and without

disabilities. J Child Fam Stu 2022; 31: 1535–1546.

https://doi.org/10.1007/s10826-022-02282-5.

Ren J, Li X, Chen S, Chen S, Nie Y. The influence of factors such

as parenting stress and social support on the state anxiety in

parents of special needs children during the COVID-19

Epidemic. Front Psychol 2020; 11: 565393.

https://doi.org/10.3389/fpsyg.2020.565393

Downloads

Published

28-02-2024

Issue

Section

Original Articles

How to Cite

1.
Muhammad Nauman, Shazia Maqbool, Ali A. Psychosocial Impact of COVID-19 Pandemic on Parents of Children with Special Needs. Pak Armed Forces Med J [Internet]. 2024 Feb. 28 [cited 2024 Nov. 3];74(1):71-5. Available from: https://pafmj.org/PAFMJ/article/view/9340