Psychosocial Impact of COVID-19 Pandemic on Parents of Children with Special Needs
DOI:
https://doi.org/10.51253/pafmj.v74i1.9340Keywords:
COVID-19, Disabled children, Child, Preschool, Adolescent, Parents, PsychologyAbstract
Objective: To determine the association of COVID-19-related psychosocial Impact in parents of children with special needs.
Study Design: Cross-sectional study.
Place and Duration of Study: Developmental-Behavioral Pediatrics Department, University of Child Health Sciences, The
Children’s Hospital, Lahore, Pakistan, from August to December 2021.
Methodology: A study sample of 213 parents of children (aged 1-16 years) with disabilities was recruited. The Perceived Stress Scale was administered.
Results: Most children 133(62.4%) with special needs were males with a mean age of 61.36±29.17 months. 91(42.7%) parents fear that either themselves or their family members could be affected by COVID-19. 75(35.2%) parents reported that their special needs child knew preventive measures for COVID-19. 147(69%) parents were facing social difficulties because of COVID-19. Income was negatively correlated with stress. Stress was more evident in parents who had a fear of the loss of a family member and who thought that disabled children needed more protection than their other children.
Conclusion: The COVID-19 pandemic had a negative effect on parents of children with special needs due to the restrictions
imposed all over the country. One of the few factors that increased stress among parents of special needs children in COVID19 were financial and social difficulties.
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Shereen MA, Khan S, Kazmi A, Bashir N, Siddique R. COVID-19
infection: Origin, transmission, and characteristics of human
coronaviruses. J Adv Res 2020; 24: 91-98.
https://doi.org/10.1016/j.jare.2020.03.005.
Guo YR, Cao QD, Hong ZS, Tan YY, Chen SD, Jin HJ, et al. The
origin, transmission and clinical therapies on coronavirus disease
(COVID-19) outbreak - an update on the status. Mil Med
Res 2020; 7(1): 11. https://doi.org/10.1186/s40779-020-00240-0.
Fegert JM, Vitiello B, Plener PL, Clemens V. Challenges and
burden of the Coronavirus 2019 (COVID-19) pandemic for child
and adolescent mental health: a narrative review to highlight
clinical and research needs in the acute phase and the long return
to normality. Child Adolesc Psychiatry Ment Health 2020; 14: 20.
https://doi.org/10.1186/s13034-020-00329-3.
Hughes N, Anderson G. The experience of the COVID-19
pandemic in a UK learning disability service: Lost in a sea of ever
changing variables - a perspective. Int J Develop Disabil 2020.
https://doi.org/10.1080/20473869.2020.1773711.
Courtenay K, Perera B. COVID-19 and people with intellectual
disability: impacts of a pandemic. Ir J Psychol Med 2020; 37(3):
-236. https://doi.org/10.1017/ipm.2020.45.
Abdelfattah F, Rababah A, Alqaryouti I, Alsartawi Z, Khlaifat D,
Awamleh A, et al. Exploring Feelings of Worry and Sources of
Stress during COVID-19 Pandemic among Parents of Children
with Disability: A Sample from Arab Countries. Educ Sci 2021;
(5): 216. https://doi.org/10.3390/educsci11050216.
Willner P, Rose J, Kroese BS, Murphy GH, Langdon PE, Clifford C,
et al. Effect of the COVID-19 pandemic on the mental health of
carers of people with intellectual disabilities. J Appl Res Intellect
Disabil 2020; 33: 1523–1533. https://doi.org/10.1111/jar.12811.
Ali A, Abbas S, Khan AA, Khan AS, Abbas HSM. Difference in
stress-related indicators between employees experiencing partial
and complete lockdowns during the COVID-19 pandemic in
Pakistan. J Emerg Manag 2021; 19(7): 177-192.
https://doi.org/10.5055/jem.0621.
Ali A, Abbas S, Khan AA, Khan AS, Farid A, Rauf MT. Health
Risk Factors among Doctors, Psychologists and Nurses of
Pakistan during COVID-19 Pandemic. J Psychol 2022; 156(4):
-294. https://doi.org/10.1080/00223980.2022.2039891.
Khan AA, Ali A, Sulehria SB, Yousaf MK, Sadiq Qayyum,
AbaidUllah S, et al. Impact of Covid-19 on training of house
officers and post-graduate residents during 3rd & 4th Wave of
Covid-19 Pandemic in a Tertiary Care Hospital. J Pak Soc Intern
Med 2022; 3(1): 41-44.
Maqbool S, Rahman F, Ali A, Farid A, Zahra W, Ullah E, et al.
Spectrum of disabilities at a tertiary care hospital; Challenges
and Recommendations. Pak Ped J 2022; 46(3): 245-53.
Cohen S, Kamarck T, Mermelstein R. A global measure of
perceived stress. J Health Soc Behav 1983; 24(4): 385-96.
Ali A, Khan AA, Abbas S, Khan AS, Ullah E. Cognitive appraisal,
Coping, Stress and Fear Contracting Covid-19 in Working People
in Pakistan. J Ration Emot Cogn Behav Ther 2021; 1-20.
https://doi.org/10.1007/s10942-021-00433-z.
Sideropoulos V, Dukes D, Hanley M, Palikara O, Rhodes S, Riby
DM, et al. The Impact of COVID-19 on Anxiety and Worries for
Families of Individuals with Special Education Needs and
Disabilities in the UK. J Autism Dev Disord 2022; 52(6): 2656-
https://doi.org/10.1007/s10803-021-05168-5.
Werner S, Hochman Y, Holler R, Shpigelman CN. Burden and
Growth during COVID-19: Comparing Parents of Children with
and without Disabilities. J Child Fam Stud 2022; 31(6): 1535-1546.
https://doi.org/10.1007/s10826-022-02282-5.
Rahman F, Maqbool S, Ali A, Mahmud T, Azhar H, Farid A, et al.
Parenting practices and aggression in childhood behaviour
disorders. Pak Armed Forces Med J 2023; 73(1): 74–78.
https://doi.org/10.51253/pafmj.v73i1.6920.
Wang L, Li D, Pan S, Zhai J, Xia W, Sun C, et al. The relationship
between 2019-nCoV and psychological distress among parents of
children with autism spectrum disorder. Global Health 2021;
(1): 23. https://doi.org/10.1186/s12992-021-00674-8.
Cankurtaran D, Tezel N, Yildiz SY, Celik G, Unlu-Akyuz E.
Evaluation of the effects of the COVID-19 pandemic on children
with cerebral palsy, caregivers' quality of life, and caregivers'
fear of COVID-19 with telemedicine. Irish J Med Sci 2021; 190(4):
–1480. https://doi.org/10.1007/s11845-021-02622-2.
Werner S, HochmanY, Holler R. Burden and growth during
COVID-19: Comparing parents of children with and without
disabilities. J Child Fam Stu 2022; 31: 1535–1546.
https://doi.org/10.1007/s10826-022-02282-5.
Ren J, Li X, Chen S, Chen S, Nie Y. The influence of factors such
as parenting stress and social support on the state anxiety in
parents of special needs children during the COVID-19
Epidemic. Front Psychol 2020; 11: 565393.
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