Adherence of Primary Caregiver To Post Stroke Dysphagia Recommendations In Pakistan

Authors

  • Rimsha Shakeel Department of Speech Language Pathology, School of Allied Health Science, Children Hospital, Lahore Pakistan
  • Nazia Mumtaz Department of speech Language Pathology, Riphah International University, Lahore Pakistan
  • Ghulam Saqulain Department of Otolaryngology, Capital Hospital, CDA, Islamabad Pakistan
  • Maryam Shakeel Department of Medicine, Army Medical College/National University of Medical Sciences (NUMS) Rawalpindi Pakistan
  • Nadeem Ahmad Department of Rehabilitation, Armed forces Institute of Rehabilitation Medicine/National University of Medical Sciences (NUMS) Rawalpindi Pakistan

DOI:

https://doi.org/10.51253/pafmj.v74i1.5981

Keywords:

Caregivers, Dysphagia, Oropharyngeal, Stroke

Abstract

Objective: To find the adherence of primary caregivers to post-stroke dysphagia recommendations in Pakistan.

Study Design: Cross-sectional study

Place and Duration of Study: Armed Forces Institute of Rehabilitation Medicine, Rawalpindi Pakistan, from Jun 2019 to April 2020.

Methodology: We recruited 92 primary caregivers of either gender aged ≥ 18 years, assisting stroke patients with dysphagia in feeding and activities of daily living. Caregivers of cases with multiple disabilities, those not aware of dysphagia recommendations and those not involved in the implementation of dysphagia recommendations were excluded. Caregiver Mealtime and Dysphagia Questionnaire (CMDQ) were used for data collection.

Results: Out of 92 Caregivers 17(18.48%) were non-compliant while 75(82%) reported significant compliance to dysphagia
recommendations with mean scores of 3.11±0.48 and 1.98±0.51, respectively. In addition, the significant difference between scores of compliant and non-compliant groups was noted for the domains of Quality, Avoidance and Disagreement (p<0.001).

Conclusion: Most primary caregivers were compliant and adhered to the dysphagia recommendation of stroke in Pakistan

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References

Donkor ES. Stroke in the 21st Century: A Snapshot of the

Burden, Epidemiology, and Quality of Life. Stroke Res Treat.

; 2018: 3238165. https://doi.org/10.1155/2018/3238165.

Feigin VL, Forouzanfar MH, Krishnamurthi R, Mensah GA,

Connor M, Bennett DA, et al. Global and regional burden of

stroke during 1990–2010: findings from the Global Burden of

Disease Study 2010. Lancet 2014; 383(9913): 245-255.

Yi X, Luo H, Zhou J, Yu M, Chen X, Tan L, et al. Prevalence of

stroke and stroke related risk factors: a population based cross

sectional survey in southwestern China. BMC Neurol 2020;

(1): 5. https://doi.org/10.1186/s12883-019-1592-z.

Khan MI, Khan JI, Ahmed SI, Ali S. The epidemiology of stroke

in a developing country (Pakistan). Pak J Neurological Sci

(3):30-44.

Flöel A. Computerised speech and language therapy in poststroke aphasia. Lancet Neurol 2019; 18(9): 806-807.

https://doi.org/10.1016/S1474-4422(19)30199-1.

Michou E, Sasegbon A, Hamdy S. Direct and Indirect Therapy:

Neurostimulation for the Treatment of Dysphagia After Stroke.

In Dysphagia. Springer; 2018.

Arnold M, Liesirova K, Broeg-Morvay A, Meisterernst J,

Schlager M, Mono ML, et al. Dysphagia in acute stroke:

incidence, burden and impact on clinical outcome. PloS One

; 11(2): e0148424.

https://doi.org/10.1371/journal.pone.0148424.

Marin S, Serra-Prat M, Ortega O, Clavé P. Cost of oropharyngeal

dysphagia after stroke: protocol for a systematic review. BMJ

Open 2018; 8(12): e022775.

https://doi.org/10.1136/bmjopen-2018-022775.

Saqulain G, Mumtaz N. Swallowing Difficulties with

Tracheostomy: A Neuro-Rehabilitation Perspective. J Islamabad

Med Dental Coll 2020; 9(1): 57-62.

Colodny N. Validation of the Caregiver Mealtime and

Dysphagia Questionnaire (CMDQ). Dysphagia 2008; 23(1):

‐58. https://doi.org/10.1007/s00455-007-9094-3.

Naing NN. Determination of sample size. The Malaysian journal

of medical sciences: Malays J Med Sci 2003; 10(2): 84-86

González-Fernández M, Ottenstein L, Atanelov L, Christian AB.

Dysphagia after stroke: an overview. Curr Phys Med Rehabil

Rep 2013; 1(3): 187-196.

Namasivayam-MacDonald AM, Shune SE. The Burden of

Dysphagia on Family Caregivers of the Elderly: A Systematic

Review. Geriatrics 2018; 3(2): 30.

https://doi.org/10.3390/geriatrics3020030.

Krekeler BN, Broadfoot CK, Johnson S, Connor NP, Rogus-Pulia

N. Patient Adherence to Dysphagia Recommendations: A

Systematic Review. Dysphagia 2018; 33(2): 173‐184.

https://doi.org/10.1007/s00455-017-9852-9.

Shim JS, Oh BM, Han TR. Factors associated with compliance

with viscosity-modified diet among dysphagic patients. Ann

Rehabil Med 2013; 37(5): 628‐632.

https://doi.org/10.5535/arm.2013.37.5.628.

McCullough KC, McCullough GH, Estes JL, Rainey J. RN

Compliance With SLP Dysphagia Recommendations in Acute

Care. Top Geriatr Rehabil 2007; 23(4): 330-340.

https://doi.org/10.1097/01.TGR.0000299161.44869.26.

Su M , Zheng G , Chen Y , Xie H, Han W , Yang Q , et al. Clinical

Applications of IDDSI Framework for Texture Recommendation

for Dysphagia Patients. J Texture Stud 2018; 49(1): 2-10.

https://doi.org/10.1111/jtxs.12306.

Moloney J, Walshe M. I Had No Idea What a Complicated

Business Eating Is": A Qualitative Study of the Impact of

Dysphagia During Stroke Recovery . Disabil Rehabil 2018;

(13): 1524-1531.

https://doi.org/10.1080/09638288.2017.1300948.

Crary MA, Carnaby GD , Shabbir Y , Miller L , Silliman S.

Clinical Variables Associated With Hydration Status in Acute

Ischemic Stroke Patients With Dysphagia. Dysphagia. 2016;

(1): 60-65. https://doi.org/10.1007/s00455-015-9658-6.

O'Connor RC. Critical Review: What is the level of compliance

with Speech-Language Pathology swallowing recommendations

among acute and community caregivers for individuals with

dysphagia? What are the factors affecting this compliance?

Medicine 2018: 195889809.

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Published

28-02-2024

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Original Articles

How to Cite

1.
Shakeel R, Mumtaz N, Saqulain G, Shakeel M, Ahmad N. Adherence of Primary Caregiver To Post Stroke Dysphagia Recommendations In Pakistan. Pak Armed Forces Med J [Internet]. 2024 Feb. 28 [cited 2024 Dec. 22];74(1):183-7. Available from: https://pafmj.org/PAFMJ/article/view/5981